A disease is rare—
until it happens to you
AKCEA CONNECT is here to assist and help you feel more empowered in your healthcare. Our support program is staffed by a team of dedicated Nurse Case Managers who understand the challenges that come along with living with a rare disease. Here are just a few ways we can help:
Your Nurse Case Manager can provide educational materials for you and your healthcare team to help with day-to-day disease management.
Your Nurse Case Manager can assess your insurance coverage, answer funding questions, and research assistance options.
Your Nurse Case Manager can help you connect with people and resources in the rare disease community so that you don’t feel isolated or alone.
Enroll below or talk to a Nurse Case Manager at
Enroll to get started with
The process is easy:
- Download, complete, and send us your enrollment form.
- We will work with your healthcare provider to confirm your prescription.
- Your Nurse Case Manager will reach out to set up a time to meet.
To experience AKCEA CONNECT support and connect with a Nurse Case Manager, download and complete the enrollment form and fax it to 1-866-AKCEAFX (1-866-252-3239) or email it to AkceaConnect@sobi-psp.com.
AKCEA CONNECT is required to gain permissions to access personal health information to assist with reimbursement support and disease management.