Nurse case manager
Your primary point of contact, every step of the way
Once you enroll, your Nurse Case Manager will be your go-to person at AKCEA CONNECT. Assigned based on where you live, your Nurse Case Manager is already familiar with local healthcare providers, hospitals, and community resources and is equipped to work with your healthcare team to create personalized support just for you.
Here are just some of the ways AKCEA CONNECT can help:
Provide tools and information to help you learn about your disease and build the confidence you need to manage it daily.
Offer one-on-one support and resources to help you own your treatment plan and advocate for what you need.
Help you and your healthcare provider build lab monitoring and injections into your life.
Reinforce the proper injection technique so you feel confident injecting on your own. Home visits and video chats are also available.
Connect you with people and groups in the rare disease community to help build your network and realize you’re not in this alone.
Provide lab testing education and help answer questions about your treatment and monitoring plan.
Questions? Talk to a Nurse Case Manager at
More members of your support team
While your Nurse Case Manager is your primary contact, these specialists also play an important role in assisting you and your healthcare team.
Akcea Reimbursement Specialist
These clinical nurses specialize in the reimbursement process and help to resolve coverage and other access-related issues you may experience.
These healthcare providers perform blood draws according to your healthcare provider’s orders in a lab, your home, or wherever is most convenient.
Specialty Pharmacy Provider
Specialty pharmacy providers fill prescriptions much like your local pharmacy. For added convenience, your prescription is mailed to your home.